Research

The Web Site of Sherokee Ilse
Bereaved Parent, International Speaker and Author of
Empty Arms:Coping with Miscarriage,Stillbirth, and Infant Death

and many other books, including Miscarriage: A Shattered Dream

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Research Study - what helps and does not help newly bereaved families in the hospital?

Was your loss over 20 weeks and less than 2 years ago?  Maybe you would like to participate in a doctoral study (questionnaire is about 20-30 minutes online) being conducted by an L & D nurse.  The purpose of the study is to determine what helps and does not help newly bereaved families in the hospital.  

Peggy writes: I have been a Labor and Delivery nurse for 15 years and now doctoral candidate at West Virginia University. In my work, I have been with many women as they experienced a stillbirth loss. I came to wonder if what we did at the time, in the hospital, if it was helpful. Could it even be harmful? We can only find out from women who know. Would you be willing to  to help me help other women as they go through their loss? Tell me your story - of those things that were offered, what was helpful? what was not helpful? If your pregnancy was greater than 20 weeks gestation and your loss occurred in the last 2 years, would you go to the website below. The survey is online and will take about 20-30 minutes to complete. It can be found at:


www.surveymonkey.com/plf

Thank you,
Peggy Lambert Fink, MSN, FNP-C
plambert@wvutech.edu

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Research Study - medical bad news delivery and the communications between patients and care providers about their diagnosis

I am a bereaved parent who had a stillbirth three years ago. I am currently co-conducting a survey about medical bad news delivery and the communications between patients and care providers about their diagnosis. I am specifically hoping to reach parents who have had a stillbirth, neonatal death (death of a child within 28 days of birth) or a pregnancy loss.

We are hoping to learn more about this kind of communication and offer insights to care-providers about the effects of these interactions. Data collected from this confidential survey will be used for completion of a course project in the master’s program at San Francisco State University. The survey is confidential and should take approximately 25 minutes to complete.

If you have any questions, I would be happy to answer them. I can be reached by email at spullen@sfsu.edu.

You can download a copy of the survey announcement (format 1, format 2), in case you would like flyers to post or circulate.

I also have hard copies of the surveys and if you send me an email with the street address, I would be happy to mail them to you.

I send my sincere thanks for considering helping get the word out about this study,

Suzanne Pullen
spullen@sfsu.edu
www.surveymonkey.com/nld

More about my story at: www.sfgate.com/pregnancyafterloss

 

 

 

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Last modified: April 22, 2008